Wednesday, December 24, 2008

Jury Acquits Transplant Surgeon in Ruben Navarro Death

Readers of this blog will be familiar with the depressing and alarming story of Ruben Navarro, who died hours after a botched attempt and a "controlled death" and organ harvesting. This occurred under a protocol still not used widely, but on the increase - labeled "donation by cardiac death (DCD)." This appears to be a recent replacement for the term "non heart-beating donation."

Hootan Roozrokh was charged with felony dependent adult abuse for his role in ordering the administration of massive doses of painkillers and sedatives when Ruben Navarro's heart kept beating after being removed from a ventilator. As a transplant surgeon, Roozrokh shouldn't have been in the same room with Navarro until after he'd been declared dead.

Here's the first few paragraphs of a story on the trial by Leslie Parilla at Sanluisobispo.com:

A San Luis Obispo jury on Thursday acquitted a transplant surgeon of dependent adult abuse in the first criminal case of its kind in the nation.

A jury of nine men and three women decided Dr. Hootan Roozrokh was not guilty beyond a reasonable doubt of felony dependent adult abuse in connection with an attempted organ removal on Feb. 3, 2006, at Sierra Vista Regional Medical Center in San Luis Obispo. Roozrokh was accused of endangering the health of 25-year-old Ruben Navarro by attempting to hasten his death during the failed procedure by ordering large amounts of painkillers.

Navarro died, but not in time for his organs to be harvested; but his death was not in question. The issue was whether the man who suffered from a debilitating neurological condition was given drugs to speed up his death.

Never before has a transplant surgeon in the United States been criminally accused of trying to hasten a patient’s death in connection with an organ removal. Transplant experts across the nation feared the case would discourage potential organ donors and transplant surgeons. Roozrokh’s attorney, M. Gerald Schwartz-bach, said the case already has had that effect.

“It was bigger than me,” Roozrokh said after the court hearing. “And they recognized that.”

Hopefully, the jury decided this case on the basis of "reasonable doubt," but there are other factors, hinted at in the paragraphs above, that give some cause for concern.

Was the jury worried about a "guilty" verdict on potential organ donations due to the negative publicity? This was certainly a major theme broadcast by transplant advocates and organizational reps over the course of the case.

In fact, it's clear that the medical profession is relieved at hearing this verdict:
Dr. Brian Liang, a law professor at California Western Law School who specializes in health law and policy, said Thursday that many in the transplant community were relieved to learn of the verdict.

“It’s been a big deal,” Liang said about the case. “I think people, certainly in the medical community, are very happy this particular case is not being seen as the typical situation, and that medical providers are actually very sensitive to how ethically they’re suppose to behave with respect to procuring organs.”

Added Liang: “And people on the other side of things see we don’t have these physician vultures standing over somebody with their scalpels out waiting for the flat-line to happen.”

Liang said the case has already done what the jury wrote about, revising the way rare cardiac-death donations are done.

“The policies were not there and the policies were generally not well defined,” Liang said. “The jury really saw that.” The United Network for Organ Sharing and others have strengthened standards for the procedures since the case was filed, Liang said.

These are nice and vaguely reassuring words from Liang, but short on details. How have policies been defined or redefined? More importantly, what guarantees are there in regard to how policies will be implemented?

In the Navarro disaster, some longstanding policies were violated, with the acquiscence of a room full of medical professionals.

That brings me to another concern in regard to influence on the jury. It's possible they thought Roozrokh was being unfairly singled out for prosecution. No other medical professionals - nurses who administered the questionable medications, the attending physician, etc. - was charged with a crime. In fact, according to earlier press accounts, they escaped professional sanctions of any kind.

In Barack Obama's book "Dreams From My Father," his aunt, warning him of the rush of relations in Kenya that might want something from him, says "if everyone is family, then no one is."

Similarly, in a situation like the Ruben Navarro case, where every single person in the room shares a degree of guilt, the thinking might go something like this - "if everyone is guilty, then no one is."

In an interesting article I came across while reading for this entry, I found this fascinating article by Laurel Fletcher and Harvey Weinstein in Human Rights Quarterly (pdf). Here's an interesting excerpt on the "if everyone is guilty" topic:
Criminal prosecutions serve to highlight the moral claim that individuals and not groups are responsible foracts of violence. The stated claim is that holding individuals accountable for these acts alleviates collective guilt by differentiating between the perpetrators and innocent bystanders, thus promoting reconciliation. In the absence of individual accountability, the fear is that the entire group ofthose in whose name atrocities were committed will be deemed collectively accountable. Dwight MacDonald conceives of collective guilt as “a Hegelian statist approach in which individuals lack will, thought, and conscience except as these are united in the ‘organic totality’ of the state.” As a result, proponents of this view assert that since everyone is guilty then no one is. Consequently collective guilt absolves everyone of responsibility for past wrongdoing. (emphasis added.)

I plan to read this article more carefully when I get back to work next week, it has a lot of interesting information on the environmental and social factors that increase the risk that people will violate their own ethical standards and the law itself in ways they might not if acting on their own.

As far as I know, the research regarding obedience and group dynamics has never been applied to people in a medical setting. Maybe the Navarro case is an indicator that this is an area of research needs to be undertaken - to improve patient safety and quality of care.

That's not to much to ask, is it? --Stephen Drake

Tuesday, December 23, 2008

Catching Up - Montana Judge Rules Assisted Suicide a Constitutional Right

Earlier this month, a Montana District Court Judge ruled that "terminally ill" patients have a right to assisted suicide under that state's constitution. Judge Dorothy McCarter dismissed the arguments that this was a legislative matter, and suggested that "terminally ill" and "competent" can be easily defined in terms of figuring out how to implement this "right."

The Attorney General in Montana has asked Judge McCarter to put her ruling on hold while his office prepares and files a formal appeal to the ruling with the Montana Supreme Court.

Not Dead Yet intends to file an amicus brief in support of the expected appeal of the ruling by Judge McCarter. The legal team working on the brief - so far - is led by Steve Gold, with assistance from Robin Stephens.

We're working with ADAPT/NDY activists in Montana on this - with Bob Liston and Marsha Katz playing leading roles.

As in the past, an amicus brief from NDY can be expected to present arguments that won't be covered by other players.

Also, as in the past, we'll be looking for sign-ons as the brief is readied and the time for filing nears.

More as this story develops. --Stephen Drake

Thursday, December 4, 2008

Something Truly Vile - Please Add Your Voice at ICAD

Occasionally, this blog addresses issues that aren't directly related to the NDY mainstays of life and death issues facing people with disabilities.

This is one of those times. As Dick Sobsey wrote said in an email to me, this news out of South Korea fits in the "truly vile" category. That means it calls for attention and action.

Briefly, four men have been convicted of repeatedly raping a sixteen-year old with developmental disabilities. The convicted are three of her uncles and her grandfather. News reports suggest the sexual assaults started when the girl was nine years old.

The four men have all been given suspended sentences.

But that isn't the worst of it.

The judge's rationale for giving them suspended sentences is that they'll be needed to continue to provide care for the girl.

In case my wording wasn't clear, the men are to be free to go home and continue to provide the "support" they've given this girl in the past.

The good news is that thousands of Koreans have responded with outrage and calls to impeach the judge.

Dick Sobsey at ICAD is trying to add a little international heat by having readers register their own feelings in a poll on the ICAD blog.

Please go there now and register your opinion on this issue - and read the links on the blog for more comprehensive discussion and news coverage. --Stephen Drake

Wednesday, December 3, 2008

Denver Post Article Blames "Autism" for Parents Killing Kids - Dick Sobsey Responds

Yesterday, the Denver Post published a truly horrible article by Nancy Lofholm titled Autism's terrible toll: Parents risk hitting a "breaking point."

In the context of this article "hitting a breaking point" means "murdering your child." Your autistic child:

Jacob Grabe, 13, could sense a storm coming several days out. He would get agitated and make strange noises. Silverware bothered him. He could eat only from plastic forks and spoons. He breezed through complicated algebra but struggled with basic division.

Nearly three months ago, when his father, Allen, allegedly shot and killed him while he was sleeping, Jacob had been exhibiting these and many other symptoms of the mysterious disorder autism for most of his short life.

He had great difficulty making friends. He had trouble controlling outbursts. He had been shuffled from school to school. He had, in recent years, made some improvements with medications. But there is no cure for autism.

Friends of the family say Jacob's father feared his son would never be able to live a normal life.

So Jacob became another statistic in a sad, pressure-cooker reality for families with autistic children.


I'll be honest. I have trouble thinking straight when I read a vile "blame the victims" story like this. You'd think I'd be used to them by now.

(As added insult, btw, Lofholm lists Katie McCarron's murder as one of several examples of murders that - I guess - we are supposed to attribute to the toll autism takes on families.)

Thankfully, Dick Sobsey is someone who can pull himself together better than I can, but even he had to calm down a bit before posting on this article. As usual, Dick is the best person I know at analyzing and deconstructing this kind of garbage. Unfortunately, he's had a lot of practice.

So, please go read Dick Sobsey's posts on this vile article on the ICAD blog:

Murder and Social Endorsement Part 1

Murder and Social Endorsement Part II

Tuesday, December 2, 2008

Update on Wagman Op-Ed -- Concord Monitor picks it up

I hope this is the end of it, but today's edition of the Concord Monitor carried Wagman's essay, using the gentler, but less accurate title of "It's time to pull out the tubes and allow my father to die."

FYI - Unlike the LA Times, the Monitor provides a "comments" section for this op-ed.

Nothing there. So far.

Monday, December 1, 2008

LA Times: "Time for Dad to die" a really disturbing essay

Yesterday's edition of the LA Times featured an op-ed by contributor and author Diana Wagman, titled "Time for Dad to die."

The op-ed by Wagman is even worse than the title would lead one to believe.

The opening sentence of her piece gives us fair warning:

I love my 90-year-old father, and I wish he would die.

Wagman goes on to relate her father's loss of some cognitive and physical abilities due to a series of strokes. Over time, he lost the ability to drive, walk his dog, do crossword puzzles or engage in the kind of spontaneous word play he valued. She also relates he was able to find some joy in things he could still do.

In October, her father had a massive stroke. He is currently in a hospital receiving acute care. By her own admission, her father isn't in a vegetative state, but is asleep most of the time. He wakes briefly maybe a couple times a day and says two words to people (appropriate to the person and occasion).

The family is conflicted about what her father would want. He has an advance directive that says he wants no extraordinary measures. He relies on a feeding tube, which at least some in the family don't regard as "extraordinary measures."

And, of course, her father's wife is facing new concerns as they face placement in a skilled nursing facility and the economic burdens that will place on her.

All of the above - except for that first sentence - is very familiar territory in the stories of families dealing with a severe health crisis and conflicting beliefs and emotions regarding what really is in a loved one's best interests.

Wagman leaves the familiar territory - and invites readers to join her - with her closing statements in the essay:
The day before I returned to Los Angeles, I was alone with Dad. He never opened his eyes or even moved the entire day. I talked to him, read to him, held his good hand and stroked his great bald head. No response. The sun went down and the room took on that eerie hospital glow. I leaned over and whispered to my father that it was OK to stop fighting. I told him we all loved him and we would never forget him. I said it was time to die. It was not easy, and I cried.

The next morning on my way to the airport, I stopped by the hospital. The nurse said that earlier Dad had opened his eyes, looked right at her and said, "Good morning." He was asleep again as I kissed him goodbye. I don't want to be the one to remove the feeding tube, but I am not sorry I said what I did. It is time for him to go.

I know people who've worked with families in similar situations. According to some of them, it's not uncommon for family members - feeling anger, hopelessness and frustration - to feel angry at the seriously ill person for not dying soon enough. Most people who feel these things have enough insight and self-awareness to seek out someone to talk to.

No one ever admits to actually saying it to a loved one.

While the feelings described in this essay may be pretty common, I'm led to believe that the actions and words described by Ms. Wagman are rare.

One wonders what kind of mindset leads to telling your father it's "time to die" and then leave the city. Was she hoping he heard her? She certainly wants all of us to know she's not sorry for telling him it's time to die.

One also has to ask what the LA Times Op-ed editor was thinking in accepting this piece - glorifying what can most charitably called "dysfunctional behavior."

One has to ask if it's any coincidence that her father never roused himself out of his sleep for her final two visits, but was able to wake up and greet his nurse.

If Ms. Wagman was at my bedside, I'd pretend to sleep for as long as possible too. --Stephen Drake